I was weary yesterday, trying to juggle half a dozen jobs at once after yet another poor night's sleep, and continuing worry over Keith. "Jennifer's tired", I announced, weary. "I" looked at me and remarked, "Jennifer's ALWAYS tired!" Hmmm. Wisdom at 4 years old . . . I'd waited all day for the District Nurse(s) to come and check Keith's pressure sores, which he had been complaining about. They came late afternoon and put some soft covers over the area, saying that the sore was healing. Keith was in discomfort though - he WILL persist sitting at just the same angle all the time and can't get comfortable when we put him on his side. Today I had to take the dressing off as a fresh area was reddening and I had to get cream on it. He isn't drinking anything like enough and has dropped a pint straight away as he has given up on tea as he can't manage hot drinks any more. He is getting fussier and fussier about what he will eat and I tried him with four different meals earlier in the week - and each mealtime can take up to an hour . . . Needless to say, he needs to eat MORE (and drink more). I got him Complan this week - just waiting for him to wave that away too.
This was the book I was tempted by. I haven't had much chance to dip into it yet, but can say what I've read so far is just up my street. She has written two others, so I may treat myself to those in the future.