I am tired and struggling to cope with this downturn in Keith's mobility as it doesn't look like improving. It's 3 weeks until we see the Parkinson's Nurse next. I hope we can struggle on until then. Whilst we have not, in writing, had a clear diagnosis of MSA (Multiple Systems Atrophy) it would appear that is what he has - the Consultant said it was certainly not straight Parkinsons, but Parkinsonism. Keith has all the symptoms of MSA and this disease doesn't respond to the Parkinsons' drugs, or only marginally. It is a very rare disease. To have it in combination with the underactive Thyroid is even rarer. Poor Keith - every night this week I have worried whether or not I will be able to get him up to bed. I have found (only this morning) that there is a special MSA site, and this has been very helpful. However, the "need to drink at least 2 litres of water a day" is not going to impress Keith. I am struggling to get 2 pints down him these days!
Part if a stall which had some nice things, but they'd have done better displaying it on tables and stands . . .
There are other BIG family worries too, and those are hanging over us like a Sword of Damocles until they are resolved. The timing couldn't have been worse and it may have huge repercussions. I have no-one I can share these problems with either which is probably the worst thing of all. If my best friend Trish had still been alive, I could have poured my heart out to her, but she died a few years ago now.
As I prepare for the Fair, I am seriously thinking this may be the last one. I can manage a one-day Fair, but 2 1/2 full on days, where you have to be there at a specific time and aren't allowed to leave until a specific time are not really doable now. I have Tam and Jon to help this weekend, but the writing is on the wall. I started the day exhausted last year - how will I cope with getting Keith up to and into bed - this took nearly an hour last night. Ah well, I will just have to cope and at least I can sit down during the day at the Fair.
I can only hope that the day improves - I've just burnt my toast and the thick cut back bacon I bought is inedible and so I will have to put it in soup or something.
Oh, and to make matters better I can't even go for a good walk to shake off the blues as it's p'ing down with rain! Right, at least I can do some sewing -I'm folding over the end on the blanket I bought, as both ends had lost much/all of the blanket stitching. I'd blanket stitch them afresh but of course, I have lost the card with JUST the right cream wool to edge them . . . Sorry to moan. Off to Llandod for wool methinks . . .
